Welcome to our Resource Links Page!
Here you will find links to various other resources relating to American Indian health and research, data sources, and information on research organizations.
Data Sources and Interactive Maps
U.S. Census Bureau
My Tribal Area - tool uses data from 2011-15 ACS
American Community Survey
Centers for Disease Control and Prevention
National Center for Health Statistics FastStats
Community Health Status Indicators 2015
Health Resources and Services Adminstrations Data Warehouse
Healthy People 2020 Office of Disease Prevention and Health Promotion
Government and Organizations
Agency for Healthcare Research and Quality
AHRQ research and activities related to AIAN populations
American Indian Cancer Foundation
American Indian Institute the University of Oklahoma
First Nations Development Institute
Great Plains Tribal Chairmen's Health Board
Missouri Breaks Industries Research, Inc
National Congress of American Indians and NCAI Policy Research Center
National Institutes of Health NIH is made up of 27 Institutes and Centers
National Institute on Minority Health and Health Disparities
Office of Minority Health
National Partnership for Action to End Health Disparities
Profile page for American Indian/Alaska Native
Office for Human Research Protections
Substance Abuse and Mental Health Services Adminstration
University of New Mexico Center for Native American Health
University of Washington Indigenous Wellness Research Institute
Data on Health and Well-being of American Indians, Alaska Natives, and other Native Americans
HHS Office of the Assistant Secretary for Planing and Evaluation
Multiple reports on Strengthening Tribal and & Community Institutions
First Nations Development Institute
Ethical Standards for Research
This report, originally named "Ethical Principles and Guidelines for the Protection of Human Subjects of Research", was published in 1979 and is used in most national and many international regulations for the protection of the rights and welfare of human subjects in research. It was adopted by the U.S. Department of Health and Human Services (HHS) and incorporated into 45 CFR 46, the code of U.S. Federal Regulations for the protection of human subjects in research.
This is the newly released 2013 revision of "World Medical Association Declaration of the Helsinki Ethical Principles for Medical Research Involving Human Subjects". The ΓÇÿDeclaration of Helsinki' is a code of ethics for clinical research that was first published in 1964 and is used in most national and international regulations for the protections of the rights and welfare of human subjects.
International Ethical Guidelines for Biomedical Research Involving Human Subjects
This is a document created by the Council for International Organizations of Medical Sciences (CIOMS) in collaboration with the World Health Organization (WHO). It was created to serve as a guide, particularly for low-resource or developing countries to use in defining policies on the ethics of biomedical research, and for establishing mechanisms for review of research involving human subjects. The latest version was published in 2002.
Standards and Operational Guidance for Ethics Review of Health-Related Research with Human Participants
Created by the World Health Organization, this contains standards for research ethics review and research ethics review committees. It also details researcher responsibilities.
The Universal Declaration on Bioethics and Human Rights
This is a document adopted in the 2005 General Conference of the United Nations Educational, Scientific, and Cultural Organization (UNESCO) by United Nations member states. It details principles and rules for ensuring the benefits of medicine, science and technology within the framework of respect for human rights.
NIMHD Transdisciplinary Collaborative Center Programs
Other Transdisciplinary Collaborative Centers working with NIMHD.
Mid-South Trandisciplinary Collaborative Center for Health Disparities Research
University of Alabama at Birmingham
Principal Investigator: Mona Fouad, MD, MPH
TCC for Health Disparties: Informing & Influencing Health Policy and Practice
Principal Investigator: David Satcher, MD
The Health Policy Research Consortium (HPRC) Program
Principal Investigator: Kweisi Mfume
National Transdisciplinary Collaborative Center for African American Men's Health
University of Minnesota
Principal Investigator: Selwyn M. Vickers, MD
Gulf States Collaborative Center for Health Policy Research (Gulf States CC)
Coastal Health Center
Principal Investigator: Sandral Hullet, MD
Collaborative Research Center for American Indian Health
Sioux Falls, SD
Principal Investigator: Amy Elliott, PhD
The Hampton University Regional Transdisciplinary Collaborative Center
Principal Investigator: Raymond E. Samuel, MD, PhD
Indigenous Governance Database
The Indigenous Governance Database is an online resource center for Native nation leaders, key decision-makers, employees, citizens, and researchers in search of educational and informational resources about nation building, sovereignty, governance, leadership, and sustainable economic and community development in Indigenous country. Developed by the Native Nations Institute for Leadership, Management, and Policy at The University of Arizona (with support from the Bush Foundation and the Morris K. Udall and Stewart L. Udall Foundation), the Database features a comprehensive catalogue of text, video and audio resources.
FAQ PDF: Questions and answers providing basic information on American Indian populations.
Research Terminology translated to Lakota by Gene D. Thin Elk, Sichangu Lakota, Towela Clan, Director - CRCAIH Culture, Bioethics, & Science Core - Lakota Dictionary
'Research Toolkit': For Health Research (from Design to Dissemination)
Fast Facts about Responsible Research Partnerships with Indigenous Communities
Fast Facts PDF