Trial mobile version Guidances- combined files 6_27_14 - page 7

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 United Nations Educational, Scientific and Cultural Organization (UNESCO):
UNESCO created the following declarations to ensure that human genetic data is not used for
purposes contrary to human rights and freedom.
 International Declaration on Human Genetic Data (2003)
 Universal Declaration on the Human Genome and Human Rights (1997)
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HIPAA PRIVACY RULE
 Protecting Personal Health Information in Research: Understanding the HIPAA Privacy Rule
This resource provides information on the Privacy Rule, incorporated into the Health Insurance
and Portability Act (HIPAA), passed to protect the private health information of living and
deceased individuals.
Excerpts:
 HIPAA Privacy Rule for Researchers: Frequently Asked Questions
 Institutional Review Boards and the HIPAA Privacy Rule
 How do Other Privacy Protections (State Laws, Federal Laws, Certificates of Confidentiality)
Interact with the Privacy Rule?
 What is the Effect of the Privacy Rule on Research Started Before the Compliance Date?